[Question #6321] Hsv1 oral and genital

17 months ago
I was diagnosed in 2006 with hsv1 oral and genital.  I recently found out I have Epstein bar as well. I am taking valtrex daily for the past two years...but even on suppressive therapy I am having outbreaks both orally and genitals at least once a month. I have had every kind of blood test done and everything comes back good. I’ve seen an immunologist as well and those tests were good too.  What else could be the cause of the constant outbreaks? I am frustrated beyond words and have seen multiple doctors. 
Terri Warren, RN, Nurse Practitioner
Terri Warren, RN, Nurse Practitioner
17 months ago
First, I would advise that you do swab testing to determine that everything you are describing as outbreaks, both oral and genital, are actually herpes outbreaks.  When someone reports this to me, and they do the swabbing, most often what they think are outbreaks are actually something else.  I'm not saying that is you, but I think it is important that this be established before doing much about it.  Once a month on suppression is highly, highly unusual for HSV 2.  And for HSV 1, not heart of genitally.  The average number of outbreaks per year for HSV 1 genital infection is one every other year.  Do you think you could do that?

Terri
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17 months ago
Thank you for your response. When I was originally diagnosed I did have the swab test done . I have had STD panel testing done multiple times between 2017 and present and everything is negative except for hsv1. I’m just not understanding why so many out breaks especially being on suppressive therapy which has been increased to 2 pills a day
Terri Warren, RN, Nurse Practitioner
Terri Warren, RN, Nurse Practitioner
17 months ago
I'm wondering if you read what I wrote about this?  What you are experiencing is highly unusual - first for HSV 1 to recur more than once or twice a year AND while on suppression.  So I think it is worth confirming that all of these are actually outbreaks.

Terri
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17 months ago
Thank you...I will do a swab test to confirm. 
Terri Warren, RN, Nurse Practitioner
Terri Warren, RN, Nurse Practitioner
17 months ago
Good!

Terri
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