[Question #8453] Genital HSV1 but symptoms are not aligned to what i have heard
44 months ago
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Hello. I am really hoping this is something that just happens for some people recently diagnosed with ghsv-1 but i need to know if i should be tested again. 3 months ago i was assaulted by another woman, she put both her genitals and mouth on my genitals, and I ended up having symptoms of painful urination about 4 days later. Exactly 1 week after the assault i went to urgent care as it was so painful to urinate to get uti medicine. The doctor examined me and told me i had 4 sores on my urethra and that it was likely herpes. She swabbed them and sent them to the lab. As i waited for the results i watched the ASHA video on genital herpes that explained genital hsv-1 was fairly mild so i hoped this would be my diagnosis if anything. I got a call that said i was hsv-1 positive....i felt kind of relieved. However, i am now almost 3 months in and i continue to have consistent breakouts. They are not painful or anything but they won't go away. I have had around 4-5 including my initial breakout. I am so confused. Also, for the past month i have nonstop been taking valcyclovir and it looks like it might have spread to my butthole. I don't know what to do. Is my diagnosis likely incorrect (i have hsv2 instead of 1)? Or is my body just sill trying to fight it for the first time? I look forward to your answer. Thank you for your help.
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Terri Warren, RN, Nurse Practitioner
44 months ago
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When you say you are having recurrent outbreaks, are you able to describe those more fully for me? Herpes outbreaks would normally be somewhat painful, especially when urine passes over them, so I'm a little confused. And all of this is happening while taking valacyclovir daily, at what dose?
It is unlikely that this is HSV 2 instead - mistyping is very rare. And HSV 1 is the thing that people get most often from receiving oral sex.
Let me know the answers to the questions above, please.
Terri
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44 months ago
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Thank you for your response. Ever since the initial outbreak on my urethra (which was very painful) i have only gotten sores at the bottom of my labia sort of inside my vagina. There seems to be one lesion that wont heal/change. It wont dry out, it is skin colored and isn't open/producing pus or anything, and i have had it for 2 weeks now. Before, i had one or two pop up in this are as well but they eventually healed. Everything after the initial outbreak was not painful. The second outbreak i had was uncomfortable but, again, not painful. Each time i get an outbreak my vagina becomes swollen and tender - specifically the area of my labia majora right next to the opening of my vagina. There is not much swelling now, but still the lesion is still there. For about 2.5 weeks now i have taken 1000mg of valcyclovir 2x daily. Is my body just still adjusting? Not sure whats going on here.
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Terri Warren, RN, Nurse Practitioner
44 months ago
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I'm not sure what is going on here either, but it might be worth getting this evaluated in person and swab tested to see if these are indeed herpes lesions or perhaps something else. It would be unusual but not unheard of, to have this many recurrences of HSV 1.
Terri
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44 months ago
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Can you tell me just how unlikely it is that i have multiple genital HSV1 outbreaks per year? Like what does the curve look like? I saw in Dr. Handsfeild's video that >40% of people either have one outbreak then never again and then the large majority of the rest have 1 to 2 more and then never again. what margin of people have more than this?
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Terri Warren, RN, Nurse Practitioner
44 months ago
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I think it is highly unlikely that you are having multiple outbreaks of HSV 1 per year.
I'm not clear where those statistics came from, but I personally rarely see anyone who has more than an outbreak once or twice a year, after the first year of being infected. As your immune system gets more familiar with the virus, you will have generally fewer and fewer recurrences. I suspect that what you have going on here is not related to genital HSV 1.
Terri
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