[Question #9517] Clear messaging around HPV disclosure

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31 months ago
Hi there! During my (35 F) last Pap smear (Jan 2022), I had a normal Pap but I was positive for a strain of high risk HPV (not 16 or 18). The research out there said disclosure is not necessary and a personal choice. My doctor confirmed, so I haven't always disclosed. Recently, I saw, some things on Reddit that had me second-guessing that decision. I did more research and I posted my findings to Reddit in a post to put the information out there for anyone who might be anxiously doom-scrolling. Here is the post: https://www.reddit.com/r/HPV/comments/zvu9t9/disclosure_of_highrisk_hpv_is_not_necessary_and/?utm_source=share&utm_medium=web2x&context=3 
WELL, it was extremely controversial. The summary is as follows. I stated that it was a choice, and may not even be that helpful, while listing several sources to back my claims. 1) HPV is ubiquitous. My partners, who are men in their 30s who have had other sexual partners, most likely already had it, have it, or will have it. Most of the population is not screened for it because it is not about widespread testing, prevention, or treatment, it is about better gauging cervical cancer risks in a patient. 2) There is not a test for men, there aren't treatments, or recommended cancer screenings for them. And it usually just goes away on its own  3) It is not about men informing their prospective partners about an exposure because that doesn't seem to be recommended and the guidance would just be to continue to get Paps at the normal intervals. 4) It is not about informing them of their risk, since the risk is the same whether or not they have sex with me. (Got that from your past responses. Thank you!)
Given the above, I just don't see why disclosure would be recommended. I am not seeing the value added. By putting this out there, I was called a "monster" and told that I was manipulating people into sleeping with me by withholding information. I would love to get your perspective. Thank you!

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Edward W. Hook M.D.
31 months ago
Welcome to our Forum and thanks for your well worded and thoughtful text.  I was impressed with your willingness to explore the issue of 
partner notification as it relates to HPV infections.  Your brief summary was right on target.  Your experience with the on-line attacks you have apparently experienced also profoundly saddened me.  Some of what was said is entirely emblematic of the all too common, stigma driven misinformation that some have internalized and which makes them judgmental towards others.  They are wrong- you are right.  Sexual health involves realistic attitudes about all that is good and the occasional downside of sexuality.  Your perspective is right on target.  

Thanks for sharing.  EWH
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31 months ago
Thank you so much for your response, Dr. Hook. It gives me the peace of mind I have been seeking through research. I really appreciate this resource and you (along with Dr. Handsfield and Ms. Warren) taking the time to answer these questions.